How to Enroll in the International HPE Registry
The registry will be used to compile a comprehensive list of patients diagnosed with HPE, to collect clinical information for researchers, to provide a means for families to contact other families, and to allow families to receive information regarding research projects in which they may want to participate. There are four ways to register.

1. Download a copy of the registry form in PDF format(English)
   
   
2. Download a copy of the registry form in PDF format(Spanish)
   
   
3. Contact: Nancy Clegg, RN, PhD, Texas Scottish Rite Hospital, Department of Neurology, 2222 Welborn Street, Dallas, Texas 75219-3993, 214-559-8411, 214-559-8383 (fax), email: Nancy Clegg.